Young girl, 11, has a unique allergy to sunlight – ABC News
Q: What is the name of the 11-year-old girl who is allergic to sunlight?
A: The girl’s name is Savannah Fulkerson.
Q: What condition does Savannah Fulkerson have?
A: Savannah has a rare condition called xeroderma pigmentosum, which makes her extremely sensitive to sunlight.
Q: How does xeroderma pigmentosum affect Savannah’s life?
A: Savannah cannot go outside during the day without wearing protective clothing and sunscreen. She also has to wear special sunglasses to protect her eyes.
Q: What precautions does Savannah have to take when going outside?
A: Savannah and her family have to cover up with special UV-protective clothing, wear sunscreen, and she even has to wear a special face mask.
Q: How does xeroderma pigmentosum affect Savannah’s social life?
A: Savannah is unable to participate in outdoor activities during the day, which can make it difficult for her to socialize and make friends.
Q: How rare is xeroderma pigmentosum?
A: Xeroderma pigmentosum is a very rare condition, affecting only about 1 in 1 million people.
The ABC News article discusses the story of an 11-year-old girl named Rhys, who suffers from a rare condition called erythropoietic protoporphyria (EPP), which makes her “allergic” to sunlight. Rhys is unable to go outside during the daytime without protective clothing and sunscreen, as exposure to sunlight can cause severe pain and blistering on her skin. This condition has significantly impacted Rhys’ daily life, as she misses out on activities such as playing outside with her friends or going to the beach.
Rhys was diagnosed with EPP when she was just a toddler, after her parents noticed that she would break out in painful rashes and blisters whenever she spent time in the sun. Since then, Rhys has had to learn how to cope with her condition by wearing special UV-protective clothing and applying sunscreen regularly. Her family has also taken measures to make their home as sun-proof as possible, with tinted windows and blinds to minimize exposure to sunlight.
Despite the challenges she faces, Rhys remains positive and resilient. She maintains a strong support system of family and friends who understand her condition and help her navigate through the difficulties of living with EPP. Rhys’ parents are also actively involved in raising awareness about the condition and advocating for more research and resources to help individuals like Rhys who suffer from EPP.
Rhys’ story sheds light on the struggles that individuals with rare conditions face on a daily basis. It serves as a reminder of the importance of empathy, understanding, and support for those who are dealing with unique health challenges. While EPP may limit Rhys’ ability to enjoy outdoor activities like other children her age, she remains a brave and inspiring young girl who refuses to let her condition define her or hold her back from living life to the fullest.
In conclusion, Rhys’ journey with EPP highlights the resilience and strength of individuals facing rare health conditions. Her story serves as a call to action for increased awareness, support, and resources for those living with conditions like EPP. By sharing her story, Rhys hopes to inspire others to embrace their differences and overcome obstacles with courage and determination.
#11YearOld #Girl #Allergic #Sunlight #ABC #News
